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Heart Breaking Story of 10month old Charlie Gard with Rare Genetic disorder. Receives Support from Pope and Trump Pending Life Support Removal.

​10 month old Charlie Gard has been on life support after being diagnosed a month after birth with a rare genetic disorder called: Mitochondrial DNA Depletion Syndrome, which has left him with irreversible brain damage and the Court has ruled that he should be allowed to “die with dignity” by taking off life support.

UKs top Paediatricians, backed by the British and European court of Justice have suggested that he be taken off life support but Charlies parents, Connie Yates and Chris Gard, have been against it, instead, seeking to go to the United states for a free experimental medical treatment for little Charlie.

His father said in a statement that he knows that his child has been fighting and will fight to the very end and lamented that he cant get to take his son home to die

His dad made a desperate plea with the court in April to save his son, begging: “He deserves this chance.”
Clutching his son’s toy monkey, Chris Gard told the High Court: 

“My son is the apple of my eye and I would do anything for him.”

Charlie’s mum and dad say he is a “prisoner” in hospital and Great Ormond Street’s treatment has been “inhuman”.

There have been protests in London over the weekend about the decision of the courts to turn off Charlies life support.  In a bid to save him, his parents and supporters have raised £1.3million so he can be sent to America for treatment.
The Pope sent a message of support from the Vatican to the parents saying that he is: 

“Praying for them in the hope that their desire to accompany and care for their own child until the end will be respected.”

United States president in a tweet stated his readiness to support tweeting:

 “If we can help little #CharlieGard, as per our friends in U.K. and the Pope, we would be delighted to do so.”

Charlies case is said to be extremely complicated because the treatment being offered by the US, called Nuclear Side Bypass Therapy has never being tested on a strain of the disease as rare as little Charlies and the specialist offering it said it is unlikely that it will be able to reverse the brain damage already suffered. 

This led to the British ruling that they do not want little Charlie to be the subject of an experimentation if there is no chance of him getting better, hence allowing him the right to die with dignity which must come first, although his parents will prefer any solution that will improve his situation and give him more time, no matter how little.

Although the Pope and Trump have supported, they do not have any say over the Court ruling because in the UK, when Doctors and parents conflict over the care of a child, then the case goes to the courts and this case has gone all the way up through the British High court, to the Court of appeal, The Supreme court and the European Court of Justice, all of whom support the doctors that the life support be turned off.

About Mitochondrial DNA depletion Syndrome:
Mitochondrial DNA depletion syndrome refers to a group of disorders that cause affected tissues to suffer from a significant drop in mitochondrial DNA.

The DNA is found in the mitochondria of cells – an organelle found in most cells in which respiration and energy production occur.

This means, as in Charlie’s case, that sufferers do not get energy to their muscles, kidneys and brain.

MDS is typically fatal in infancy and early childhood.

There is currently no cure but some treatments have shown a reduction in symptoms.

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